29th March 2018
Time 18.30- 20.30
Tesco Community Centre, Riverside Avenue, Bournemouth, Dorset BH7 7DY
SWAN stands for ‘syndromes without a name’. It is not a diagnosis, but a term used when a child or young adult is believed to have a genetic condition and testing has failed to identify its genetic cause. Syndromes without a name are also referred to as undiagnosed genetic conditions, unknown genetic conditions or undiagnosed genetic disorders.