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SWAN UK (SYNDROMES WITHOUT A NAME)

 

29th March 2018
Time 18.30- 20.30

Venue
Tesco Community Centre, Riverside Avenue, Bournemouth, Dorset BH7 7DY

About

SWAN stands for ‘syndromes without a name’. It is not a diagnosis, but a term used when a child or young adult is believed to have a genetic condition and testing has failed to identify its genetic cause. Syndromes without a name are also referred to as undiagnosed genetic conditions, unknown genetic conditions or undiagnosed genetic disorders.


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